Expert Panel on Palliative & End-of-Life Care

The Expert Panel on Palliative and End-of-Life Care identifies and disseminates the public policy priorities for clinical care, research and education related to palliative and end of life care. This includes legislation related to advance care planning, importance for and recognition of the need for and coverage of hospice and palliative care its role in health care reform.

Inaugural Year: 2000

Chair:
Susan DeSanto-Madeya, PhD, APRN-CNS, RN, FAAN
Miriam Weyker Endowed Chair for Palliative Care
University of Rhode Island College of Nursing

Vice Chair:
Kathleen Lindell, PhD, RN, FAAN
Doctor
Medical University of South Carolina

Board Liaison: Linda Scott

Staff Liaison: Madeleine Rohrbach

Previous Chairs: Sharon Kozachik (2020-2022), Harleah Buck (2019-2020), Paula Meek (2018-2019), Emily Haozous, Inge B. Corless (2006), Anne Belcher (2001), Connie Dahlin (2000), Anne Hughes (2000) 

Recent Publications: 

• Policy Dialogue: Healthcare Systems Post-COVID: Exploring Reforms & Policy Implications (Hosted in December 2021)

  Hosted by the Building Health Care System Excellence Expert Panel in Collaboration with the Expert Panels on Palliative and End of Life Care; Military and Veterans Health; and Acute and Critical Care, this dialogue featured thought-provoking discussion about policy issues associated with the complexity of healthcare systems and their resulting burdens through the lens of the COVID-19 pandemic. Leading experts discussed the innovations implemented during the pandemic as well as the policy initiatives introduced to address health care solutions needed in the post-pandemic world.

• Practice Guidelines: International consensus-based policy recommendations to advance universal palliative care access (October 2021)
• Consensus Statement: Nursing's Roles in Ensuring Universal Palliative Care Access (October 2021)
• Policy Brief: Achieving advance care planning in diverse, underserved populations (May-June 2018) 
• Policy Brief: The Institute of Medicine report Dying in America: Improving quality and honoring individual preferences near the end of life. (December 2014) 
• Policy Brief: Advance care planning as an urgent public health concern. (November 2012) 

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