Expert Panel on Genomic Nursing & Health Care
The Expert Panel on Genomic Nursing & Health Care translates new genetic knowledge in the areas of practice, education and research while developing position statements regarding the ethical and policy issues regarding the protection of genetic information.
Inaugural Year: 1999
Chair:
Wendy Henderson, PhD, MSN, CRNP, FAAN
Investigator and Chief, Digestive Disorders Unit, Biobehavioral Branch
Division of Intramural Research
National Institute of Nursing Research, NIH
Vice Chair:
Joachim Voss, PhD, RN, ACRN, FAAN
Professor and Program Director, Doctor of Philosophy in Nursing Prgram
Case Western University, Frances Payne Bolton School of Nursing
Co-Chair Appointee:
Julie Lynch, PhD, MBA, RN, FAAN
Research Scientist
VA Informatics and Computing Infrastructure (VINCI) Services
Board Liaison: Pamela Jeffries
Staff Liaison: Sonya Desai
Previous Chairs: Mei Fu (2018-2019), Bernice Coleman (2017-2018), Angela Starkweather (2016-2017), Kathleen Hickey (2015-2016), Maria Katapodi (2014-2015), Debra Lyon (2013-2014), Jacquelyn Taylor (2012-2013), Ann Cashion (2012), Lorraine Frazier (2011), Shu-Fen Wung (2010), Michael Weaver (2008), Kathleen Calzone (2008), Suzanne Feetham (2005), Kathleen M. Potempa (2001), Janet Williams (2001), Sue Donaldson (2000), Suzanne Feetham (1999-2002)
Publications:
- Policy Brief: Strengthen federal and local policies to advance precision health implementation and nurses’ impact on healthcare quality and safety (July-August 2018)
- Policy Brief: Strengthen federal regulation of laboratory-developed and direct-to-consumer genetic testing (January-February 2018)
- Policy Brief: Improve coverage of newborn genetic screening to include the Recommended Uniform Screening Panel and newborn screening registry (July-August 2017)
- Starkweather, A., et al, (2017), Policy Brief: Improve coverage of newborn genetic screening to include the Recommended Uniform Screening Panel and newborn screening registry. Nursing Outlook, Jul-Aug; 65(4);480–484.
- Calzone KA, Cashion A, Feetham S, Jenkins J, Prows CA, Williams JK, Wung SF. (2010). Nurses transforming health care using genetics and genomics. Nursing Outlook, Jan; 58(1):26-35.
- Feetham, S.L. Lead Editor , Williams, J.K Co-Editor (2004) Nursing and Genetics - Leadership for Global Health International Council of Nurses, Geneva Switzerland.
Summary:
The Genomic Nursing & Health Care Expert Panel is actively engaged in the application of genomics practice, and the review, oversight and development of relevant testimony and evidence-based recommendations. Members have participated in the Genomics Applications in Practice and Prevention Network (GAPPNET); collaborated with the American Association of Colleges of Nursing (AACN), Secretary’s Advisory Committee on Genetics, Health and Society, and National Human Genome Research Institute (NHGRI); and provided vision for the landmark IOM Report, “Leading Change, Advancing Health.”
Among particular activities, the panel prepares written comments for AACN Master’s Essentials and the NHGRI Long-Range Planning, which is a wide-ranging assessment of the state of the art in genomics and defining where the field should be going in the next several years. Relative to the IOM report, the Expert Panel supports the concept that genetic education for nurses should include medically relevant genomics and the ethics of genetics to enable nurses of the future to educate patients and their families about the genetics of diseases across the lifespan.
Resources:
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