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Genetic Nursing & Health Care Expert Panel

The Expert Panel on Genetic Health Care translates new genetic knowledge in the areas of practice, education and research while also developing position statements regarding the ethical and policy issues regarding the protection of genetic information.

Inaugural Year: 1999

Current Chairs:

Ann Cashion, PhD, RN, FAAN
Professor
University of Tennessee Health Science Center
920 Madison Avenue
Suite 507N
Memphis TN 38163
Phone: 901-448-1762
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it


Jackie Taylor, PhD, RN, PNP-BC, FAAN
Associate Professor
Yale University
100 Church St S
Rm 295
New Haven CT 06536
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Staff Liaison: Penny Roberts

Board Liaison: Terri Weaver

Previous Chairs:  Lorraine Frazier (2011), Shu-Fen Wung (2010), Michael Weaver (2008), Kathleen Calzone (2008),  Kathleen M. Potempa (2001), Janet Williams (2001),  Suzanne Feetham (1999-2002)

Frequency of Meetings: Annually in person

Publications:
2010   Calzone KA, Cashion A, Feetham S, Jenkins J, Prows CA, Williams JK, Wung SF,  Nurses transforming health Care using genetics and genomics.  Nursing Outlook, Jan; 58(1):26-35. 

Feetham, S.L. Lead Editor , Williams, J.K Co-Editor (2004) Nursing and Genetics - Leadership for Global Health International Council of Nurses, Geneva Switzerland .


Charge Given to Expert Panel:
Influence the clinical, research, education, policy, funding, and regulatory environment for integration of genetics/genomics into nursing practice and healthcare.

Summary:
The Genetic Nursing and Health Care Expert panel is actively engaged in the application of genomics practice, and the review, oversight and development of relevant testimony, advanced-degree curriculum essentials, and evidence-based recommendations. Members have participated in the Genomics Applications in Practice and Prevention Network (GAPPNET); collaborated with the American Association of Colleges of Nursing (AACN), Secretary’s Advisory Committee on Genetics, Health and Society, and National Human Genome Research Institute (NHGRI); and provided vision for the landmark IOM Report, “Leading Change, Advancing Health.”

Among particular activities, the panel prepares written comments for AACN Master’s Essentials and the NHGRI Long-Range Planning, which is a wide-ranging assessment of the state of the art in genomics and defining where the field should be going in the next several years. Relative to the IOM report, the Expert Panel supports the concept that genetic education for nurses should include medically relevant genomics and the ethics of genetics to enable nurses of the future to educate patients and their families about the genetics of diseases across the lifespan.  They will review the updated IOM report to ensure genetic content is included in the report.

Resources:

Comments on the Secretary’s Advisory Committee on Genetics, Health and Society


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